Sunday, January 21, 2018

January 20, 2018

Greetings My Friend,

My laptop computer died, my tablet died so I thought why not get an iPad, I kept hearing that they are user friendly, the one I looked at seemed like I could condense down to using the iPad instead of having 2 things. It made sense at the time, so I asked my niece who works for Apple to order one for me, she did and boy what a week I had. My brain has been worked out to the max. Somehow I keep messing up the iPad with the codes and such then I need a recovery so I spent hours on the phone with Tec support. Finally Tec support walked me through things I was understanding somewhat and I felt it was time to explore my way around only to get locked out again. Having done a recovery a few times with Tec support my thought was to do it myself. I tried a few times only to discover that I need Tec support to help me. We got the bright idea to go over to Walmart because there aren't many places to go to in our area of small town America. They could  not help me but suggested we head over to a place 3 hours from us. This is where we generally travel to when we need to see specialists, find a big name store and such. That is the plan for this coming week. Needless to say being on the computer, on the phone has been wearing at best. It can challenge my Parkinson's as well, and it did a bit, the week before I found myself getting agitated over nothing. God has been working on my temper for a long time to the point that I rarely get upset over things anymore so when I fussed at Junior I was surprised. I let it slide, apologized and thought nothing about it until I fussed at him again. By that time I had been reading on the Parkinson's help site that PD patients often have mood swings. My heart went to prayer asking God to help me not to allow this to take hold in me. My heart says that as time goes on I will need people to take care of me and the last thing I want to be is fussy. It also seems since the start of the year we are running to doctor's appointments more than usual and that our pace has not truly gotten back to the routines we have worked hard to put into place. I have also learned that routines are important for PD patients, I have always operated best with routines as well. I find myself tiring out more again, like last week with all of the computer technology stuff. Life is not stagnant so learning to move through life with its ups and downs is really normal as well. Parkinson's also deals with chronic fatigue a lot as most chronic illnesses, generally I have been able to manage my fatigue although sometimes lately I have had to push myself to keep going. I am going to stay in prayer asking God to guide me, next week I will see my PCP and I will let her know what is going on with me. Instead of using lavender essential oils only at night to get to sleep with, I will also use them in the diffuser during the day, I have started drinking chamomile tea to help quiet me and time will tell how well these things are helping me. God has been faithful to guide me this far and I know He will be there going forward. May God bless you and keep you make His face shine on you. Love Janet

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July 16, 2018

Greetings my Friend, As I write I have been waking up for several hours already. With Parkinson's I don't roll out of bed anymore ...